About Us
Meet the family behind IRT Heart Journey
Ronald & Amanda
We're Ronald and Amanda, Illyana's parents. When we learned about our daughter's diagnosis of Tetralogy of Fallot with Absent Pulmonary Valve and 22q11.2 deletion syndrome (DiGeorge syndrome), our world changed forever.
But in that moment of fear, we found strength in our faith and in each other. We created this website to share our journey, connect with other families facing similar challenges, and raise awareness about Congenital Heart Disease.
We believe every story matters, and through sharing ours, we hope to bring hope to others walking this path.
“In the midst of our storm, we found peace in knowing that God was holding us. Every heartbeat is a miracle, every day is a gift.”— Ronald & Amanda
Our Mission
Raise Awareness
Educate others about CHD and the challenges families face.
Build Community
Connect with other CHD families and create a support network.
Share Hope
Inspire others through faith, resilience, and love.
Meet Illyana
Illyana is our warrior, our miracle, our heart. Despite the challenges she's faced from birth, she continues to amaze us with her strength, her smile, and her spirit. She's the reason we fight, the reason we believe, and the reason we share this journey with the world.
Get in Touch
Email Us
contact@irt-heartjourney.com
Location
Tennessee, USA
Want to learn more about CHD and Illyana's specific conditions?
Learn About CHD