Meet Our Friends
We're not alone in this journey. Meet some of the incredible families who have become part of our support network.
One of the most precious gifts on this journey has been connecting with other families facing similar challenges. These warrior families understand the hospital visits, the fears, the celebrations of small victories. They've become our extended family, and we're honored to share their stories.
Mateo
FeaturedBeckwith-Wiedemann Syndrome (BWS)
Mateo's family has been a source of inspiration and support. Like us, they understand the journey of having a child with a rare condition. Together, we've found strength in our shared experiences.
The Johnson Family
FeaturedHypoplastic Left Heart Syndrome
The Johnsons reached out after reading our story. Their daughter Emma underwent three open-heart surgeries in her first three years. Their faith and perseverance inspire us every day.
Little Warrior Lucas
Tetralogy of Fallot
Lucas shares Illyana's TOF diagnosis. His mom connected with us through a CHD support group, and we've been cheering each other on ever since.
Share Your Story
Are you a CHD family or do you have a child with a rare condition? We'd love to hear your story and potentially feature you on our site.
Submit Your Story